The Jean-Jacques Beineix Collection: Locked-In Syndrome

Description

Jean-Dominique Bauby, editor-in-chief of French fashion magazine, ELLE, suffered a brain stem stroke at the age of 43. After 20 days in a coma, Bauby awoke to find himself totally paralyzed and speechless, afflicted with the rare condition known as Locked-In Syndrome whereby a patient is aware and awake but cannot move or speak due to paralysis of nearly all voluntary muscles. His story came to the attention of famed French director, Jean-Jacques Beineix, when it was learned that Bauby learned to communicate by blinking his left eye. Beineix was the first to document Bauby s long journey and daily struggle to write his book, The Diving Bell and the Butterfly, which transports the reader into the mind of an immobile man, his humor and his faith in life. This documentary and the book inspired the critically-acclaimed film of the same title.

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